Thank you to all of you who read, pray, comment, or all three. I know it helps me and helps keep me sane (or perhaps makes me sane). :)
I've again realized that not everything remains or ever was within my control. I saw my Endocrinologist today. The good news is it appears the cancer is gone (there is always an outside chance it's still in a lymph node here or there). Based on a bunch of data my doctor plugged into his computer and my opposition to radioiodine treatment, I require no further treatment. Also, the odds of the cancer spreading elsewhere in my body remain slim.
My odds for recurrence could be high, based on the malignancy of most of my lymph nodes that were removed during surgery. I'll undergo ultrasound exams every six months in order to monitor nodule growth.
My blood test revealed hypothyroidism. My TSH was 26.0. The 'normal' range is 0.3-5.0. If you're lost, as I was, higher TSH means lower thyroid. (Perhaps my blog friend, DO, could chime in with a more accurate explanation). My doctor said, "I can tell just by your face that you are hypothyroid." Huh? What do I look like? "Kind of bloated." Nice.
I asked what other symptoms I might notice with hypothyroidism (besides 'fat face') and he said dry skin, low energy, constipation, and depression. Check. Check. Check. Check. And, weight gain. Check.
I told him about my grandmother-in-law who sent me such a nice note, comparing her Graves disease to my cancer (because, you know, neither one of us has a thyroid anymore). She told me "not to worry -- you'll just get fat." Thanks. I told my doctor I thought this was ridiculous. I figured if my hormone levels are properly monitored, I'm not doomed to be fat. He agreed with me.
I was disappointed, yet relieved when my doctor told me to wait a few months before trying for another baby. Disappointed because I'd love to safely try again. Relieved because I needed somebody else to confirm that I'm not crazy for worrying. He agreed I could get pregnant, but hypothyroidism could cause issues I just won't allow myself to type.
So, my Synthroid has been increased and I'll test again in roughly two months. I'm frustrated it takes that long before a blood test can reveal a change in TSH. Again, I'm brought back to 'not within my control.'
5.12.2009
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16 comments:
I wish more women could have their thyroid issues diagnosed and treated. I went for a few years with all of the symptoms, and just thought I was literally losing my mind. Thankfully, I finally found a doctor willing to listen. Sure enough, my thyroid was practically non-functioning.
My mom and I call our hypothyroids..."hippo"thyroids. Yeah, I know. NOT funny.
I am so thankful you did receive some good news. And, I'll be thinking of you as you maneuver through finding the right time to try and get pregnant.
You know I love you! (((hugs)))
So glad that overall your appt went well. I have Hashimoto's which mean a lifetime of Synthroid too. Fun times. And your doc is right. As long as you are monitored and kept within a healthy range, you arent doomed to be fat (thanks grandma!).
They want you to wait, I assume, because the baby's thyroid develops so early. If yours is out of whack it could mess with the baby's. My RE actually has me get into the hyper- range (which isnt easy when you have an autoimmune disease keeping you hypo) so that when I conceive I can safely go 4-5 weeks without my meds being adjusted. But, by the time 5w has gone by, I'm back within "adjustment" range. It's just a safety precaution, I'm sure. Once you are in the normal range, they'll give you the go, I'm sure.
Sending you hugs
So so thankful to read the good news that the cancer looks gone, but a true bummer about the hypothyroidism. My sister suffers with that. Ugh. Up down all round, as she says. Sending you some beautiful thoughts and love as you maneuver through this time. None of this is easy, but good news is a like a little glimmer of light. XOXOXO
Like the others have said, it is nice to read some good news for a change. I hope that your hypothyroid will become manageable. Thinking of you on this next part of your journey.
xo
Good news... kind of, right? You will have the next couple months to read all about this and contemplate what to do next. By reading the comments, we have lots of blogger friends who seem to know all too well about thyroid issues. Too bad we don't live closer, I would give you a big hug and kiss on your bloated cheek :-).
I'm glad that things are looking good at the moment. I know it is tough to hear you have to wait longer to TTC, but we are all wishing and hoping a healthy pregnancy for you as soon as it is best for your body.
I hope the increased meds will help to stablize your thyroid levels. I'm sorry you are dealing with this at all though. ((((HUGS))))
Hummm. . . okay, well, generally good news, right? First of all, congrats on being cancer free!!!! After that - I'm really not much help :) I did some research on hypothyroidism when I was tested for it a few weeks ago - I had all the symptoms but, alas, it was jut that my critical anemia was still, well, critical. I do remember reading that it can complicate pregnancy, but also that it was manageable, yes?
happy for the good news!
It's the "accepting" of the lack of control that is the problem, right?
I'm glad there is at least some good news in there. Thinking of you...
oh, honey, hang in, control is so overrated anyway, right?!. . .xoxo
First, I'm SO relieved to hear that your cancer is gone! I'm sorry about the hypothyroid diagnosis but glad that you know what to look for now and how to treat and monitor it. While it's so, so hard to wait for something you want so dearly--another baby!--it's good to be armed with the knowledge that a little waiting should allow you to have a safe and healthy pregnancy.
I think about you daily!
Your sons comment, by the way, about the worms looking at the dancing eggs' legs cracked me up! That's just perfect. :)
xxoo
Congrats on kicking Cancer's butt!
Hope all goes well as you learn to regualate your thyroid issues.
Hugs!
Glad to hear the cancer is gone!
SO glad things are clear and that your doc is listening to you! Hope you get the green light to try again when you are ready. Sending you good health vibes!!
Hi OM,
I am the one with the 15 year old who was dx with papillary thyroid cancer and I had questions for you. I know this post is old but I just happened to come across your comments on my blog. She had her surgery on March 2nd and still is not regulated. She started out on 50 mcg of Synthroid and was bumped up to 75 and now 100mcg. It just seems to take so damn long to get into the normal range. I wish you the best of luck with this and still think of you often.
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